Introduction to Japan Brain Tumor Alliance

Together we are walking towards a brighter future!

Japan Brain Tumor Alliance (JBTA) is a non-profit organization which aim to establish a network of brain tumor patient/family, medical expert and welfare/education expert to support brain tumor patients and their families.

 

 Main Activities 

-       Advocacy Activities

-       Exchange information with other patient groups in Japan and overseas

-       Patient support activities

 

Collect information from other patient groups and conferences in Japan and overseas

-        Promote brain tumor research for cutting-edge therapeutic approaches to be established as rapidly as possible

-        Improve the quality of life of brain tumor patients

-        Increase the awareness of brain tumors

Exchange information with other patient groups in Japan and overseas

-        Collect latest information on brain tumor from overseas

-        Collect information on medical organizations/clinical trials

-        Provide the above information to the members of JBTA

Patient support activities

-        Organize networking events for the patients

-        Conduct workshops including lectures by the experts

-        Questions and Answers

Recent Activities

-        Participated IBTA (International Brain Tumor Alliance) congress

-        Participated JSNO (Japan Society for Neuro-Oncology) congress

-        Convened an information-exchange session with JCOG (Japan Clinical Oncology Group)

-        Established APBTA (Asia Pacific Brain Tumor Alliance)

Future Prospects

-        Conduct seminars throughout Japan (e.g. Kanto area, Nagoya, Kansai area)

-        Address the unmet needs of the patients at conferences (e.g. American Association for Cancer Research, Japan Cancer Association, Pharmaceutical Society of Japan)

-        Contribute to the development of clinical practice guidelines and patient guidelines by medical experts

-        Collaborate with organizations such as JCOG and RCJ (Rare Cancers Japan)

Defeat brain tumors together!

We welcome not only patients and their family members, but volunteer workers/corporate sponsors as well. Please contact the JBTA secretariat if you are interested.

To support the JBTA

Your kind donations and the membership dues allow JBTA to stay active. By providing even a small donation, you can be part of an effort to support the patients.

To be a member of JBTA, visit www.jbta.org/register/. (Japanese)

To donate

-       JAPAN POST BANK

Account Number: 00160-8-261444

Payee: トクヒ)脳腫瘍ネットワーク

-       Japan Net Bank

001 Savings account

Account Number: 5441355

Payee: ノウシュヨウネットワーク

 

 What is brain tumor? 

Brain tumor is a mass or growth of abnormal cells in the brain or skull. There are many types of brain tumors, such as meningiomas (tumors that form on membranes that cover the brain and spinal cord). Brain tumors can be benign, or malignant. The outcome of the prognosis depends on the pathological diagnosis. The type and location of a brain tumor could be substantially different between pediatric and adult. A primary brain tumor originates in your cranial nerve tissue, and a secondary brain tumor, also known as a metastatic brain tumor, occurs when cancer cells spread to your brain from another organ. The incidence rate of brain tumor is about 28 in 100,000 and it is regarded to be a rare cancer.

 

 The main symptoms of brain tumor  

Headaches are a common symptom of a brain tumor, but symptoms could depend on the location of the tumor. 

Symptoms could be: headaches, nausea, dizziness, numbness or paralysis in the arm or leg, impaired eyesight and vision, difficulty walking, cognitive impairment, and hearing loss etc.

 

 What causes brain tumor? 

The cause of primary brain tumor has yet to be defined.

 

 Types of brain tumors 

There are primary brain tumors and secondary brain tumors. Primary brain tumors could be either benign or malignant, and there are various types of primary brain tumors.

 

If you are diagnosed with a brain tumor, please consult your doctor about the key points below:

-       The location and size of the brain tumor

-       The detail of your pathological diagnosis

-       The future treatment direction

-       The necessity of an operation and operational risk

-       Chemotherapy regimen

-       Radiation therapy

-       TTF tumor treating fields

-       Prognosis (predicting the likely or expected development of a disease)

-       The expected changes in the quality of life

-       The economic burden of the medical treatment

-       Palliative care

 

 Contact Information 

NPO JBTA Secretariat (English Inquiry)

4-26-18 Kotmaoka, Tsurumi, Yokohama, Kanagawa, Japan

Zip code: 233-0071  Tel: 080-5190-4968

Laureline Gatellier

 

 To become a JBTA member 

There are two types of membership.

To register, please visit www.jbta.org/register/. (Japanese)

 

Full member

Supporting member

Annual membership due

1unit – 1,000 yen
(as many unit as you wish)

A: 1unit as an individual – 1,000 yen

B: 1 unit as a group – 30,000 yen

(as many unit as you wish)

Membership eligibility

Patients, family members, bereaved family members

Non-full members

Membership duration

The membership is valid for 1 year since you register for the first time/renew your membership

To transfer a membership due

-       JAPAN POST BANK

Account Number: 00160-8-261444

Payee: トクヒ)脳腫瘍ネットワーク

-       Japan Net Bank

001 Savings account

Account Number: 5441355

Payee: ノウシュヨウネットワーク